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We particularly need trustees with experience in grant applications, fundraising and publicity.
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The Fibroduck Foundation is pleased to announce that we have been offered, and the Trustees have accepted, the opportunity to join a prestigious biomedical study into the mechanisms of pain in fibromyalgia being carried out by Brighton and Sussex Medical School, part of the University of Sussex.
The project is already under way, and you can read about the existing arms of the study on this link:
The funds raised by The Fibroduck Foundation will be invested in this multi-
The specific areas of study in which we are investing is twofold:
· the costs of up to 12 months of research staff time for analysis and interpretation of data already generated by the autonomic dysfunction arm of the project, and
· specialist consumable support for a new transcriptomic analysis arm of the project.
Explained in plain English
The University research team has produced far more data than it has the resources to analyse. With this donation, they will now be able to process, analyse and disseminate critical physiological data that has already been collected as part of their project. It is hoped that this data will confirm the importance of autonomic dysfunction (including orthostatic intolerance) in the generation of pain and fatigue symptoms in patients with Fibromyalgia.
It is already known in the scientific and medical communities that orthostatic intolerance is common in both Fibromyalgia and ME/CFS. This project hopes to demonstrate this relationship directly, and link it with changes in pain, fatigue and responsivity to inflammation in patients with Fibromyalgia.
It is hoped that this part of the study could deliver scientific knowledge that has the potential to influence targeted treatments.
The specialist consumable resource we are funding will support the analysis of genome-
Scientists on other projects have already shown that people who have medical conditions with a lot of fatigue and pain have changes in their transcriptomatics. This study now aims to go further, and show the transcriptomic differences associated with an inflammatory challenge in patients with Fibromyalgia. This too has the potential to influence further scientific research and ultimately treatment targets.
The main research programme is already under way, and the team is led by Professor Kevin Davies, who is Head of the Department of Clinical & Experimental Medicine at the University, and also practices Rheumatology as Honorary Consultant at Brighton and Sussex University Hospitals Trust. He is also the Trust’s Associate Medical Director, Head of Research and Development. His bio is here https://www.bsms.ac.uk/about/contact-
The existing arms of the study are focused on: autonomic dysfunction; hypermobility and the role of collagen; and the abnormal responses of FM patients’ bodies to (what would be to healthy people) minor challenges such as vaccines. By looking at different aspects of the condition, we believe the study overall will have direct relevance to most of our patient community.
As Trustees, we feel this is the best use of the funds raised by patients and their supporters, because, through the various arms of the study, it will have direct implications for diagnosis and treatment of the majority of patients with fibromyalgia. In discussion with Professor Davies, it is clear that he is extremely well in tune with the symptoms experienced by people with fibromyalgia (PWFM) and potential causes.
The team at Brighton have also indicated that patients who wish to do so may apply to be part of the study on a self-
We will announce more about the May 12th events as soon as details are available.