We are appealing for more trustees to help in the management of the Fibroduck Foundation.
We particularly need trustees with experience in grant applications, fundraising and publicity.
Unit 191 Blackpool Selfstore,
Tellcom Business Centre,
20 Clifton Road, Blackpool
There are numerous ways you can get involved and help Fibroduck. Please visit this page to read all about the help we need here.
DUCK30 £3 to 70070 OR DUCK05 £5 to 70070 OR DUCK10 £10 to 70070 OR DUCK20 to 70070
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Pacing is probably the one word you’ll get sick of hearing but it’s the single most important tool in your Fibromyalgia tool kit. Pacing in simple terms, means managing your energy and the activities you do.
The sooner you learn to pace yourself adequately the more stable your Fibromyalgia and general health will remain. Think of your body as a car battery with duff cells, it takes four times as long to charge them up as it should do and they drain down twice as fast as healthy people’s.
For example, if you decide to take a shower, you may need time to rest between drying and getting yourself dressed. If you take the dog for a walk, it’ll mean resting for a few hours before and after you return. Try not to do too much on a good day, save some of that vital energy for tomorrow.
Everything you do throughout the day will drain your batteries, from brushing your teeth to hanging out the washing. It’s about managing your energy and choosing how you spend it. Most people find they go through a period of whoosh and crash until they manage to find a level that works for them.
It’s very tempting when you have a ‘better’ day to rush round and try and catch up on loads of outstanding chores. By using all your energy in one day it may take days of resting before you begin to feel better again. If you run your batteries too low then you may struggle to recover and go into full flare up of your symptoms. Everybody’s levels are different so it’s important to listen to your body and leave some reserves in the tank. The more you whoosh and crash the more flare ups you’ll have and they’ll last longer.
There are many aids that help with pacing, a mobility scooter is one of those that can really save energy yet still allow you to go where you want to. It’s hard to get your head around to begin with, nobody likes to think of themselves as disabled. Isolation can be a really big problem when living with a chronic condition, so it’s important to get out and mix with people when our health allows. I resisted a scooter for ages because I don’t look ill but eventually I got over that mental barrier and now I regularly go to the park with the dog and sit out in the sunshine. It’s made a real difference and I’m less housebound as a result.
There are mobility aids that you can get from getting your GP (or referring yourself) to occupational health services. They will come round and do an assessment of your home and work out what aids and adaptions you need and provide them for free. so it’s well worth getting referred as there’s a whole range of aids depending on your own needs.
It’s worth keeping an activity diary when you’re learning to pace yourself, similar to a symptom diary. Note down what activity you do when and how it made you feel afterwards. This could help you pin point the most draining activities so you can make sure you only tackle one draining activity each day, or every few days.
Don’t be too hard on yourself if you start a task and have to rest or abandon it half way through. Life won’t fall apart because you only had enough energy to clean half the house. Learn what’s important and let the rest take care of itself. We have a saying in our house; you don’t make memories sitting on the sofa. So make sure that you spend some of your available energy doing something nice for you. Whether that’s a fun day out with the family, a meal out with friends or some retail therapy.